New documentary explores the relationship between people with disabilities and their aides

About two years ago we were honored to publish a great post by Eva Sweeney on why she supports people with physical disabilities speaking up and taking action on their own behalf. Eva writes regular accounts of  her daily life with Cerebral Palsy on her blog “The Deal with Disability,” and she has just made a new documentary called “Respect: The Joy of Aides”, which explores the relationship between people with disabilities and their aides. Spoiler alert: it looks phenomenal and important. Eva writes of her latest project:

“Being in the disabled community myself, and seeing how some people treat and interact with their aides, made me want to show the more positive side of having aides and being an aide. I have rather a unique perspective on aides and their employers. I think some people with disabilities treat their aides as just their hands or just like servants. They don’t communicate openly and just order aides around. When those “relationships” (if you can call it that) go sour, the family and friends in the disabled person’s life blame their aide and don’t look at both sides of the relationship. So I hope Respect: The Joy of Aides shows a more balanced relationship and that the aide and the person with disabilities are both responsible for whether the partnership works.”

There are many layers that make a documentary like this significant. Of course, the trailer gets at issues of access and independence among people with disabilities, which are of themselves a feminist issue. But the fact that women have historically been pressured to take on the caregiver role, and been under-valued in that position, adds some nuance to the discussion as well. One of the most compelling parts of the trailer for me is when a woman who is ostensibly one of the caregivers featured in the film discusses feeling torn between genuinely enjoying her job as an aide to Eva, and recognizing that it would be better for her personally to move on to other career opportunities. That’s tough stuff, and gender issues factor in heavily.

Check out the trailer on Vimeo. And if your interest is piqued, go order yourself the DVD!

Brooklyn, NY

Lori Adelman started blogging with Feministing in 2008, and now runs partnerships and strategy as a co-Executive Director. She is also the Director of Youth Engagement at Women Deliver, where she promotes meaningful youth engagement in international development efforts, including through running the award-winning Women Deliver Young Leaders Program. Lori was formerly the Director of Global Communications at Planned Parenthood Federation of America, and has also worked at the United Nations Foundation on the Secretary-General's flagship Every Woman Every Child initiative, and at the International Women’s Health Coalition and Human Rights Watch. As a leading voice on women’s rights issues, Lori frequently consults, speaks and publishes on feminism, activism and movement-building. A graduate of Harvard University, Lori has been named to The Root 100 list of the most influential African Americans in the United States, and to Forbes Magazine‘s list of the “30 Under 30” successful mediamakers. She lives in Brooklyn, NY.

Lori Adelman is an Executive Director of Feministing in charge of Partnerships.

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